22Q11.2 Deletion (DiGeorge Syndrome/VCFS)
General Information
- 22q educational videos (UC Davis)
- American Heart Association
- Children's Hospital of Philadelphia's 22q and You Center
- Children’s Heart Federation (UK)
- Chromosome 22 Central
- For Genetests
- ImmuneDisease.com
- Max Appeal (UK)
- Mayo Clinic
- More about 22q11.2 Deletion
- Southeastern Regional Center for Excellence for 22q
- The 22q11 Group in England and Wales
- Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
- www.22q.org
Specialty Centers and Services
- Center for Pediatric Feeding and Swallowing Center at St. Joseph's Children’s Hospital, Paterson, New Jersey
- Dragonfly Forest Camp
- Family Activity Week at Dragonfly Forest Camp (a partnership between Elwyn Genetics and the Dempster Family Foundation)
Support Groups
- http://www.chop.edu/service/22q-and-you-center/resources-for-families/international-support-groups.html
- http://www.chop.edu/service/22q-and-you-center/resources-for-families/us-support-groups.html
- Pour le Syndrome de DiGeorge Fondation Amanda Raymond-Lamoureux
Additional Information
- Genetics Home Reference
- Hypoparathyroidism UK
- Opitz G/BBB syndrome
- Speech and Language reference (Max Appeal)
Conferences
- “22q11.2 Deletion Syndrome Conference on Behavior and Learning“ February 27-28, 2010 – University of Florida, Gainesville, FL
- The 7th Annual 22Q11.2 Deletion Meeting and 10th Annual Max Appeal Conference July 29-31, 2010 –Ricoh Arena, Coventry, UK
Camps
Educational Resources
- A Different Life: growing up learning disabled and other adventures by Quinn Bradlee
- American Speech-Language-Hearing Association
- Dunamis. custom technology solutions since 1984: 1-800-828-2443
- Educating Children with Velo-Cardio-Facial Syndrome by Donna Cutler-Landsman. (excellent!)
- Helping a Child with Nonverbal Learning Disorder or Asperger's Syndrome: A Parent's Guide by Kathryn Stewart
- Helping the Child Who Doesn't Fit In by Stephen Nowicki and Marshall P. Duke
- National Information Center for Children and Youth with Disabilities
- Nonverbal Learning Disabilities at School by Pamela B. Tanguay and Sue Thompson
- Parent to Parent of Georgia
- START-to-FINISH Books -reading solutions: 1-800-999-4660
- Teaching Your Child the Language of Social Success by Marshall P. Duke et al
